What am I being asked to do?
You are being invited to take part in a research project. Before you decide whether or not to take part,
it is important for you to understand why the research is being done and what it will involve.
Please take time to read the following information carefully.
What is it I am being asked to be involved in?
The Oliver McGowan Mandatory Training on Learning Disability and Autism has been developed to help ensure that health and social care professionals
'receive learning disability and autism training appropriate to their role' (NHS England, 2024). We have been selected by the National Institute for
Health and Care Research to evaluate the implementation and impact of this training. As part of this process, we will be surveying multiple groups.
The aim of this survey is to explore the views of health and social care professionals in relation to The Oliver McGowan Mandatory Training on Learning Disability and Autism.
This survey is part of a wider evaluation of the training.
The survey should take around 15-20 minutes to complete. The majority of questions in this survey are multiple choice. For free text question items, please
avoid disclosing information that would risk rendering specific individuals identifiable. Please be advised that the survey includes question items about
attitudes towards marginal groups, mental health, and physical health. The survey includes the:
- Normalisation MeAsure Development questionnaire (NoMAD), a validated measure that assesses the implementation of interventions.
- Jefferson Scale of Empathy (Health Professions version), a validated measure of empathy in healthcare professionals.
- Attitudes Toward Intellectual Disability (ATTID) questionnaire - short form, a validated measure of attitudes towards people with learning disability.
- The Knowledge of Autism Questionnaire - UK (KAQ-UK), a validated measure of autism knowledge.
- The interprofessional collaborative competency attainment survey (ICCAS), a validated measure of self-reported competencies of interprofessional care.
In addition to completing the survey, a selected number of participants wll be invited to take part in a follow-up interview. If you would like to be considered, you may provide your contact details at the end of survey.
Who can take part?
This survey has been designed to be completed by health and social care professionals based in England.
Do I have to take part?
Please note that participation is voluntary. If you do decide to take part, you may withdraw at any point for any reason before submitting your answers. The data you have provided up until you decide to withdraw will be retained.
What are the data protection safeguards of the overall study-design?
This study complies with the General Data Protection Regulation Act known as GDPR (2018) in the UK.
Our duty is to maintain the security and confidentiality of your research answers.
We do this by storing your responses and keeping the survey materials on the University of Leicester shared hard-drive for a period not exceeding 10 years. We will maintain a data deletion register and destroy all data in 10 yearsʼ time on 1st August 2035, however the dataset may be published prior to this point in a form where specific individuals will not be rendered identifiable.
What will happen to any data that I provide?
We will not collect any data that could directly identify you.
What will happen to the results of the research project?
We will report our findings in evaluation reports, as well as potentially in medical journals and at conferences. We will endeavour to ensure that no individuals are rendered identifiable when reporting the survey data.
How would I access support?
We would hope that completing this survey would not cause significant distress to participants. However, if the experience of completing this survey does cause you significant distress, please access support via the usual National Health Service route.
Who has reviewed the research project?
This project has been reviewed by an appropriate ethics committee at the University of Leicester, the application number is: 2884
Contact for Further Information
Further information about the study can be obtained by contacting the study team on OMMTevaluation@leicester.ac.uk.
Who to contact if you have any concerns or if I want to make a complaint
If you have any concerns or queries about the way in which the research project has been conducted, you should contact the Chair of the University
Research Ethics Committee on ethics@le.ac.uk.
If you require more data protection information then you can access this via the Universityʼs Information Assurance Services:
Information Assurance Services
University of Leicester
University Road
Leicester
LE1 7RH
Telephone: +44 (0)116 229 7945 E: ias@le.ac.uk Website:
https://www2.le.ac.uk/offices/ias
Thank you for taking time to read the participant information sheet.
References
NHS England (2024).The Oliver McGowan Mandatory Training on Learning Disability and Autism.
https://www.hee.nhs.uk/our-work/learning-disability/current-projects/oliver-mcgowan-mandatory-training-learning-disability-autism
Finch, T.L., Girling, M., May, C.R., Mair, F.S., Murray, E., Treweek, S., Steen, I.N., McColl, E.M.,
Dickinson, C., Rapley, T. (2015). Nomad: Implementation measure based on Normalization Process
Theory. [Measurement instrument]. Retrieved from
http://www.normalizationprocess.org
Hojat, M., Gonnella, J. S., Nasca, T. J., Mangione, S., Veloksi, J. J., & Magee, M. (2002). The
Jefferson Scale of Physician Empathy: further psychometric data and differences by gender and
specialty at item level. Academic medicine, 77(10), S58-S60.
Morin, D., Valois, P., Crocker, A. G., & Robitaille, C. (2019). Development and psychometric properties
of the Attitudes toward Intellectual Disability questionnaire–Short Form. Journal of Intellectual
Disability Research, 63(6), 539-547.
Langhorne, S., Uglik-Marucha, N., Broadhurst, C., Lieven, E., Pearson, A., Vitoratou, S., & Leadbitter,
K. (2024). Correction: The Knowledge of Autism Questionnaire-UK: Development and Initial Psychometric Evaluation.
Journal of autism and developmental disorders, 54(12), 4765.
Archibald, D., Trumpower, D., & MacDonald, C. J. (2014). Validation of the interprofessional collaborative
competency attainment survey (ICCAS). Journal of Interprofessional Care, 28(6), 553- 558.