Health and Social Care Professionals

Oliver McGowan Mandatory Training on Learning Disability and Autism: Survey Information

**Content Warning**
This research relates to marginalised groups, mental health, and physical health.

Thank you for considering taking part in this research study survey online. Without the input of participants like yourself, we would not be able to make constructive changes from research results to try to improve how we do things in the future. We appreciate your interest in the evaluation of the Oliver McGowan Mandatory Training on Learning Disability and Autism.
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Please click on the Terms of Reference and accept them to continue

1. Privacy Notice for Research Participants

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Research Study title & Researcher Name:

The National Oliver McGowan Mandatory Training on Learning Disability and Autism Evaluation: Health and Social Care Professionals Survey

Short title: OMMT Health and Social Care Professionals Survey

**Content Warning**
This research relates to marginalised groups, mental health, and physical health.

Principal Investigators: Dr Samuel Tromans, Prof Traolach Brugha

Co-investigators: Dr Jennifer Creese, Prof Nicola Mackintosh, Dr Tom Morris

Researchers: Dr Zoe Morgan, Dr Joy Spiliopoulos

This Privacy Notice provides information about how the University of Leicester collects and uses your personal information when you take part in this research project.

The University of Leicester is the Data Controller of any data that you supply for this research. This means that we are responsible for looking after your information and using it properly. This means that the University will make the decisions on how your data is used and for what reasons.

The Data Protection Officer is: Parmjit Singh Gill, who can be contacted at: dpo@leicester.ac.uk

Why do we need your data?

The Oliver McGowan Mandatory Training on Learning Disability and Autism (OMMT) has been developed to help ensure that health and social care professionals 'receive learning disability and autism training appropriate to their role' (NHS England, 2024). We have been selected by the National Institute for Health and Care Research to evaluate the implementation and impact of this training. As part of this process, we will be surveying multiple groups.

The aim of this survey is to explore the views of health and social care professionals, based in England, in relation to The Oliver McGowan Mandatory Training on Learning Disability and Autism.

University of Leicester's legal basis for collecting this data is:

The legal basis for the processing of participant information that we are collecting and using for the study is that it is 'necessary for the performance of a task in the public interest (Public Task)' as set out in the Data Protection Act 2018 and UK GDPR Article 6.1.(e). Research is a task that is performed in the public interest.

Our additional conditions for processing special category information are:

that it is necessary for 'archiving in the public interest, scientific research or statistical purposes' as set out in the Data Protection Act 2018 and UK GDPR Article 9.2.(j).

What type of data will the University of Leicester use?

During the survey we will gather demographics, such as ethnicity, nationality, gender, professional background, and other characteristics, to ensure that we are capturing diversity of participant backgrounds and experiences. Your participation will be confidential and all data we collect will be anonymised.

Who will the University of Leicester share your data with?

Access to survey data will be limited to members of the research team comprising staff from the University of Leicester.

We are also required to provide progress reports and summarised, anonymised research information to our grant funders the National Institute for Health and Care Research for their related research purposes as described in this notice but this will not include any information about individual participants.

We will only share with all these parties the minimum information that is necessary for them to undertake the task they are performing.

Pseudonymisation is a technique that replaces or removes information in a data set that identifies an individual. Pseudonymisation does not change the status of the data as personal data for the purposes of Data Protection Legislation.

Will the University of Leicester transfer my data outside of the UK?

No.

What rights do I have regarding my data held by the University of Leicester?

Please note that you have the following rights,

  • The right of access -- you can request access to the data held about you.

  • The right of rectification -- you can ask us to correct inaccurate data

  • The right to object to processing your personal data

  • The right to restrict your personal data

Please note some of the above rights are no absolute, where personal data is no longer identifiable (i.e. coded, pseudonymised or anonymised), the rights can no longer be enforced.

If you wish to exercise any of these rights please contact the University's Information Assurance Service by email ias@leicester.ac.uk

Where did the University of Leicester source my data from?

Potential participants who are health and social care professionals based in England will be approached via email and invited to take part in the survey.

Are there any consequences of not providing the requested data?

There are no consequences of not providing data for this research. It is purely voluntary.

Will there be any automated decision making using my data?

There will be no use of automated decision making in scope of UK Data Protection and Privacy legislation.

How long will the University of Leicester keep my data?

In line with the law, we will only keep your data for as long as we need to so that we can fulfil our research objectives. Adhering to University of Leicester procedures, data will be stored for ten years following the end of the study. Data generated by the research project must be retained in accordance with the University's Research Code of Practice. Data generated in the course of the research must be kept securely in paper or electronic form in line with Section 5 of the Research Code of Practice.

Who can I contact if I have concerns?

In the event of any questions about the research project, please contact the researchers in the first instance on OMMTevaluation@leicester.ac.uk.

If you have any concerns about the way in which the research project has been conducted, please contact the Chair of the University Research Ethics Committee at ethics@leicester.ac.uk.

The Information Commissioner can be contacted on:

Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK95AF.
Tel: 0303 123 1113. Email contact can be made by accessing www.ico.org.uk

Yes, I confirm I have read the privacy notice.
Yes, I confirm I have read the privacy notice.

Introduction

We will not ask you to identify yourself in the survey. To maintain overall privacy please DO NOT IDENTIFY yourself.

Click 'NEXT' to start answering the survey.

Yes
No
Yes
No

Survey Consent

For each statement, please select 'Yes' if you agree to it.
Agreement with all statements is required to take part in the survey.

YES
Yes
Yes
Yes
YES
Yes
YES
Yes
YES
Yes
Yes
Yes
Yes
Yes

Demographic Details

Male
Female
Intersex
Prefer not to say
Male
Female
Intersex
Prefer not to say
Male
Female
In another way
Prefer not to say
Male
Female
In another way
Prefer not to say
Yes
No
Prefer not to say
Yes
No
Prefer not to say
Yes, a lot
Yes, a little
Not at all
Prefer not to say
Yes, a lot
Yes, a little
Not at all
Prefer not to say
Yes
No
Yes
No

Part 1 of Oliver McGowan Mandatory Training is the online e-learning.


Please note that all questions in this section of the survey relate to Part 1 only.

I have completed Part 1 training
I have not yet undertaken any Part 1 training
I have completed Part 1 training
I have not yet undertaken any Part 1 training

Reaction



26. Please indicate your level of agreement with the following statements by selecting the most appropriate option. (Part 1 training) Please use the 5-point scale provided between 1 (Strongly Disagree) to 5 (Strongly Agree) scale provided.

Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5

Changes in health and social care professional attitudes, knowledge, and skills



27. Please indicate your level of agreement with the following statements by selecting the most appropriate option. (Part 1 training) Please use the 5-point scale provided between 1 (Strongly Disagree) to 5 (Strongly Agree) scale provided.

Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5

Behavioural change



28. Please indicate your level of agreement with the following statements by selecting the most appropriate option. (Part 1 training) Please use the 5-point scale provided between 1 (Strongly Disagree) to 5 (Strongly Agree) scale provided.

Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5

Changes in Organisational Practice and Patient Outcomes



29. Please indicate your level of agreement with the following statements by selecting the most appropriate option. (Part 1 training) Please use the 5-point scale provided between 1 (Strongly Disagree) to 5 (Strongly Agree) scale provided.

Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Yes
No
Yes
No

Part 2 of the Oliver McGowan Mandatory Training has two tiers:

Tier 1 : 'For people who require general awareness of the support autistic people or people with a learning disability may need (NHS England, 2024).' This training takes the form of a live 1 hour online interactive session.

Tier 2 : 'For people who may need to provide care and support for autistic people or people with a learning disability (NHS England, 2024).' This training takes the form of a 1-day face-to-face training session.

I have completed Part 2
Tier 1 training (1-hour online interactive session)
I have completed Part 2
Tier 2 training (1-day face to face training)
I have not yet undertaken any
Part 2 training
I have completed Part 2
Tier 1 training (1-hour online interactive session)
I have completed Part 2
Tier 2 training (1-day face to face training)
I have not yet undertaken any Part 2 training

Reaction



34. Please indicate your level of agreement with the following statements by selecting the most appropriate option. (Part 2 training) Please use the 5-point scale provided between 1 (Strongly Disagree) to 5 (Strongly Agree) scale provided.

Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5

Changes in health and social care professional attitudes, knowledge, and skills



35. Please indicate your level of agreement with the following statements by selecting the most appropriate option. (Part 2 training) Please use the 5-point scale provided between 1 (Strongly Disagree) to 5 (Strongly Agree) scale provided.

Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5

Behavioural change



36. Please indicate your level of agreement with the following statements by selecting the most appropriate option. (Part 2 training) Please use the 5-point scale provided between 1 (Strongly Disagree) to 5 (Strongly Agree) scale provided.

Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5

Changes in Organisational Practice and Patient Outcomes



37. Please indicate your level of agreement with the following statements by selecting the most appropriate option. (Part 2 training) Please use the 5-point scale provided between 1 (Strongly Disagree) to 5 (Strongly Agree) scale provided.

Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Neutral
1 2 3 4 5
Yes
No
Yes
No

Oliver McGowan Mandatory Training Knowledge Questions



40. Please indicate your level of agreement with the following statements about people with learning disability.

True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure

41. Please indicate your level of agreement with the following statements about autistic people

True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure

42. Which of the following would be considered examples of reasonable adjustments ?

Yes
No
Not Sure
Yes
No
Not Sure
Yes
No
Not Sure
Yes
No
Not Sure
Yes
No
Not Sure
Yes
No
Not Sure
Yes
No
Not Sure
Yes
No
Not Sure
Yes
No
Not Sure
Yes
No
Not Sure
Yes
No
Not Sure
Yes
No
Not Sure

43. Please indicate your level of agreement with the following statements about diagnostic overshadowing

.
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure

44. Please indicate your level of agreement with the following statements about the Stopping over medication of people with a learning disability and autistic people (STOMP) programme.

True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
True
False
Not Sure
Yes
No
Not Sure
Yes
No
Not Sure


Normalisation Measure Development Questionnaire (NoMAD) - Survey Instructions


This survey asks questions about the implementation of the Oliver McGowan Mandatory Training. We understand that people involved with the Oliver McGowan Mandatory Training have different roles, and that people may have more than one role. For this survey, please answer all the statements from the perspective of this role. Depending on your role or responsibilities in the Oliver McGowan Mandatory Training, some statements may be more relevant than others. The survey is in 2 parts.

Part A includes three general questions about the Oliver McGowan Mandatory Training. Part B contains a set of more detailed questions about the Oliver McGowan Mandatory Training. For each statement in Part B, there is the option to agree or disagree with what is being asked (OPTION A). However, if you feel that the statement is not relevant to you, there are also options to tell us why (OPTION B). Please take the time to decide which answer best suits your experience for each statement and select the appropriate option.

I am involved in managing or overseeing the Oliver McGowan Mandatory Training
I am involved in delivering the Oliver McGowan Mandatory Training
I am NOT involved in managing, overseeing, or delivering the Oliver McGowan Mandatory Training
I am involved in managing or overseeing the Oliver McGowan Mandatory Training
I am involved in delivering the Oliver McGowan Mandatory Training
I am NOT involved in managing, overseeing, or delivering the Oliver McGowan Mandatory Training

Part A

General questions about the Oliver McGowan Mandatory Training



Please rate between 1 - 10
1Still feels very new 2 3 4 5 6 7 8 9 10Feels completely
familiar
Please rate between 1 - 10
1Not at all 2 3 4 5Somewhat 6 7 8 9 10Completely
Please rate between 1 - 10
1Not at all 2 3 4 5Somewhat 6 7 8 9 10Completely

Part B

Detailed questions about the Oliver McGowan Mandatory Training



51. For each statement please select an answer that best suits your experience using Option A (Strongly Agree, Agree, Neither agree nor disagree, Disagree, Strongly disagree). If the statement is not relevant to you please select an answer from Option B (Not relevant to my role, Not relevant at this stage, Not relevant to this training).

Jefferson Scale of Empathy (Physician/Health Professions version)



Instructions: Please indicate the extent of your agreement or disagreement with each of the following statements.


Please use the following 7-point scale (a higher number on the scale indicates more agreement): Mark one and only one response for each statement.

1 --- 2 --- 3 --- 4 --- 5 --- 6 --- 7
Strongly Disagree           Strongly Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


Please rate between 1 - 7
1Strongly
Disagree
2 3 4 5 6 7Strongly
Agree


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